Copyright © 2008 UCSD ADRC.
All rights reserved.

 

ALZHEIMER’S and RELATED DISORDERS RESOURCE PACKET

Compiled by the UCSD Shiley-Marcos Alzheimer's Disease Research Center (858-822-4800)
and UCSD Senior’s Only Care (SOCARE) (619-471-3833)

Updated October, 2012

 

SELECTED READING LIST FOR CAREGIVERS

There are numerous valuable resources on Alzheimer's disease that may not be included in this listing. These specific resources are arranged alphabetically.  

A Caregiver’s Guide to Lewy Body Dementia by Helen Buell Whitworth and James Whitworth. demosHEALTH, 2011

A Dignified Life – The Best Friends Approach to Alzheimer’s Care by Virginia Bell and David Troxel.  Health Communications Inc., 2012.

 

Alzheimer's Disease - A Guide for Families and Caregivers by Lenore Powell and Katie Courtice. Perseus Publishing.  Revised and updated, 2002.

Alzheimer's Early Stages: First Steps in Caring and Treatment by Dan Kuhn, MSW, Hunter House, 2003. 

Coach Broyles’ Playbook for Alzheimer’s Caregivers - A Practical Tips Guide, 2006.  Free of charge by calling the Alzheimer’s Association at 800-272-3900

Coping with Alzheimer’s – A Caregiver’s Emotional Survival Guide by Rose Oliver and Frances Bock.  Dodd, Mead and Co., 1987.

Learning to Speak Alzheimer’s by Joanne Koenig Coste.  Houghton Mifflin, 2003.

Living with Mild Cognitive Impairment by N. Anderson et.al. Oxford University Press, 2012

Living Your Best with Early-Stage Alzheimer’s – An Essential Guide by Lisa Snyder, MSW. Sunrise River Press, 2010.

Speaking Our Minds – What It’s Like to Have Alzheimer’s –Revised Edition by Lisa Snyder, MSW.  Health Professions Press, 2009

Staying Connected While Letting Go – The Paradox of Alzheimer’s Caregiving by Sandy Braff and Mary Rose Olenik.  M.Evans and Co., 2003

The Alzheimer’s Action Plan by P. Murali Doraiswamy, MD and Lisa Gwyther, MSW.  St Martin’s Press, 2008

The Comfort of Home – A Guide for Caregivers by Meyer, Mittleman, and Epstein. Care Trust Publications, 2008.

The 36 Hour Day: A Family Guide to Caring for Persons With Alzheimer's, Related Dementing Illnesses and Memory Losses in Late Life by Nancy Mace &Peter Rabins. Johns Hopkins Press, revised 2006

What If It’s Not Alzheimer’s? Edited by Lisa Radin and Gary Radin.  Prometheus Books, 2008.

 

FOR THE PERSON WITH ALZHEIMER’S or a RELATED DEMENTIA

Living Your Best with Early-Stage Alzheimer’s – An Essential Guide by Lisa Snyder, MSW. Sunrise River Press, 2010

What to do When the Doctor Says it’s Early-Stage Alzheimer’s by T. Feinberg, and W. Yu.  Fair Winds Press, 2005.

Perspectives – A Newsletter for Individuals with Alzheimer’s or a Related Disorder. Quarterly newsletter available by surface mail or free of charge by email. Contact Lisa Snyder, at the UCSD Shiley-Marcos Alzheimer’s Disease Research Center at 858-822-4800 or lsnyder@ucsd.edu to subscribe.  

Taking Action: A Personal and Practical Guide for Persons with Memory Loss and Living Well Workbook for People with MCI or Early Dementia.Free workbooks that includes brief discussions on early-stage issues and space to write down personal information about living with dementia. Download at: http://www.alz.org/mnnd/in_my_community_56780.asp

Help and Hope – for persons diagnosed with Alzheimer’s disease and related disorders.A 13-page booklet published by the Northern California/Northern Nevada Chapter of the Alzheimer’s Association and is written for the person with Alzheimer’s or a related dementia. Go to http://www.alz.org/norcal/in_my_community_14292.asp and click onto the Help and Hope downloadable link to access the PDF.

By Us For Us Guides:  Published in Canada, these guides are written by and for persons with dementia and cover: Memory Workouts; Managing Triggers; Enhancing Wellness; Tips and Strategies; and Communication. They are available to download for free or to order at: http://www.marep.uwaterloo.ca/products/bufu.html

 

RESOURCES FOR CHILDREN AND TEENS

National Institution on Aging: ADEAR
http://www.nia.nih.gov/alzheimers/alzheimers-disease-information-children-and-teens-resource-list
This website is directly for Children and Teens, explaining Alzheimer disease. This site provides books and stories that children can read to learn more about the disease (books intended for children 5-11).

Alzheimer’s Association
http://www.alz.org/living_with_alzheimers_just_for_kids_and_teens.asp
Alzheimer’ s Association is dedicated to getting kids and teens involved in helping and coping with the dementia process.

Alzheimer’s Society of Toronto
http://www.asmt.org/edu_teensandchildren.htm
A website used to provide information about Alzheimer’s disease for teens and children.

FOR FURTHER READING RECOMMENDATIONS

Alzheimer's Association National Clearing House
www.alz.org

800-272-3900

Alzheimer's Disease Education and Referral (ADEAR)
www.nia.nih.gov/alzheimers

800-438-4380

Family Caregiver Alliance
www.caregiver.org

800-445-8106