ALZHEIMER’S and RELATED DISORDERS RESOURCE PACKET
Compiled by the UCSD Shiley-Marcos Alzheimer's Disease Research Center (858-822-4800)
and UCSD Senior’s Only Care (SOCARE) (619-471-3833)
Updated October, 2012
SELECTED READING LIST FOR CAREGIVERS
There are numerous valuable resources on Alzheimer's disease that may not be included in this listing. These specific resources are arranged alphabetically.
A Caregiver’s Guide to Lewy Body Dementia by Helen Buell Whitworth and James Whitworth. demosHEALTH, 2011
A Dignified Life – The Best Friends Approach to Alzheimer’s Care by Virginia Bell and David Troxel. Health Communications Inc., 2012.
Alzheimer's Disease - A Guide for Families and Caregivers by Lenore Powell and Katie Courtice. Perseus Publishing. Revised and updated, 2002.
Alzheimer's Early Stages: First Steps in Caring and Treatment by Dan Kuhn, MSW, Hunter House, 2003.
Coach Broyles’ Playbook for Alzheimer’s Caregivers - A Practical Tips Guide, 2006. Free of charge by calling the Alzheimer’s Association at 800-272-3900
Coping with Alzheimer’s – A Caregiver’s Emotional Survival Guide by Rose Oliver and Frances Bock. Dodd, Mead and Co., 1987.
Learning to Speak Alzheimer’s by Joanne Koenig Coste. Houghton Mifflin, 2003.
Living with Mild Cognitive Impairment by N. Anderson et.al. Oxford University Press, 2012
Living Your Best with Early-Stage Alzheimer’s – An Essential Guide by Lisa Snyder, MSW. Sunrise River Press, 2010.
Speaking Our Minds – What It’s Like to Have Alzheimer’s –Revised Edition by Lisa Snyder, MSW. Health Professions Press, 2009
Staying Connected While Letting Go – The Paradox of Alzheimer’s Caregiving by Sandy Braff and Mary Rose Olenik. M.Evans and Co., 2003
The Alzheimer’s Action Plan by P. Murali Doraiswamy, MD and Lisa Gwyther, MSW. St Martin’s Press, 2008
The Comfort of Home – A Guide for Caregivers by Meyer, Mittleman, and Epstein. Care Trust Publications, 2008.
The 36 Hour Day: A Family Guide to Caring for Persons With Alzheimer's, Related Dementing Illnesses and Memory Losses in Late Life by Nancy Mace &Peter Rabins. Johns Hopkins Press, revised 2006
What If It’s Not Alzheimer’s? Edited by Lisa Radin and Gary Radin. Prometheus Books, 2008.
FOR THE PERSON WITH ALZHEIMER’S or a RELATED DEMENTIA
Living Your Best with Early-Stage Alzheimer’s – An Essential Guide by Lisa Snyder, MSW. Sunrise River Press, 2010
What to do When the Doctor Says it’s Early-Stage Alzheimer’s by T. Feinberg, and W. Yu. Fair Winds Press, 2005.
Perspectives – A Newsletter for Individuals with Alzheimer’s or a Related Disorder. Quarterly newsletter available by surface mail or free of charge by email. Contact Lisa Snyder, at the UCSD Shiley-Marcos Alzheimer’s Disease Research Center at 858-822-4800 or firstname.lastname@example.org to subscribe.
Taking Action: A Personal and Practical Guide for Persons with Memory Loss and Living Well Workbook for People with MCI or Early Dementia.Free workbooks that includes brief discussions on early-stage issues and space to write down personal information about living with dementia. Download at: http://www.alz.org/mnnd/in_my_community_56780.asp
Help and Hope – for persons diagnosed with Alzheimer’s disease and related disorders.A 13-page booklet published by the Northern California/Northern Nevada Chapter of the Alzheimer’s Association and is written for the person with Alzheimer’s or a related dementia. Go to http://www.alz.org/norcal/in_my_community_14292.asp and click onto the Help and Hope downloadable link to access the PDF.
By Us For Us Guides: Published in Canada, these guides are written by and for persons with dementia and cover: Memory Workouts; Managing Triggers; Enhancing Wellness; Tips and Strategies; and Communication. They are available to download for free or to order at: http://www.marep.uwaterloo.ca/products/bufu.html
RESOURCES FOR CHILDREN AND TEENS
National Institution on Aging: ADEAR
This website is directly for Children and Teens, explaining Alzheimer disease. This site provides books and stories that children can read to learn more about the disease (books intended for children 5-11).
Alzheimer’ s Association is dedicated to getting kids and teens involved in helping and coping with the dementia process.
Alzheimer’s Society of Toronto
A website used to provide information about Alzheimer’s disease for teens and children.
FOR FURTHER READING RECOMMENDATIONS
Alzheimer's Association National Clearing House
Alzheimer's Disease Education and Referral (ADEAR)
Family Caregiver Alliance