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All rights reserved.

 

ALZHEIMER’S and RELATED DISORDERS RESOURCE PACKET

Compiled by UCSD's Senior's Only Care
and the UCSD Shiley-Marcos Alzheimer's Disease Research Center (858-622-5800) Updated 3/11

Selected Readings for Family Members and Caregivers


 (There are numerous valuable resources on Alzheimer's disease that may not be included in this listing.  Your local bookstore can order any requested book).   

Living Your Best with Early-Stage Alzheimer’s – An Essential Guide by Lisa Snyder, MSW, LCSW. Sunrise River Press, 2010.

A Caregiver’s Guide to Lewy Body Dementia by Helen Buell Whitworth and James Whitworth. demosHEALTH, 2011

Speaking Our Minds – What It’s Like to Have Alzheimer’s –Revised Edition by Lisa Snyder, LCSW.  Health Professions Press, 2009

The Alzheimer’s Action Plan by P. Murali Doraiswamy, MD and Lisa Gwyther, MSW.  St Martin’s Press, 2008

What If It’s Not Alzheimer’s? Edited by Lisa Radin and Gary Radin.  Prometheus Books, 2008.

The Comfort of Home – A Guide for Caregivers by Meyer, Mittleman, and Epstein. Care Trust Publications, 2008.

The 36 Hour Day: A Family Guide to Caring for Persons With Alzheimer's, Related Dementing Illnesses and Memory Losses in Late Life by Nancy Mace &Peter Rabins. Johns Hopkins Press, revised 2006

Coach Broyles’ Playbook for Alzheimer’s Caregivers - A Practical Tips Guide, 2006.  Free of charge by calling the Alzheimer’s Association at 800-272-3900

When Your Loved One Has Dementia – A Simple Guide for Caregivers by J. Glenner, J. Stehman, J. Davagnino, M Galante, M Green. Johns Hopkins, 2005

What to do When the Doctor Says it’s Early-Stage Alzheimer’s by T. Feinberg, and W. Yu.  Fair Winds Press, 2005.

Learning to Speak Alzheimer’s by Joanne Koenig Coste.  Houghton Mifflin, 2003.

Alzheimer's Early Stages: First Steps in Caring and Treatment by Dan Kuhn, MSW, Hunter House, 2003. 

Staying Connected While Letting Go – The Paradox of Alzheimer’s Caregiving by Sandy Braff and Mary Rose Olenik.  M.Evans and Co., 2003

A Dignified Life – The Best Friends Approach to Alzheimer’s Care – A Guide for Family Caregivers by Virginia Bell and David Troxel.  Health Communications Inc., 2002.

Alzheimer's Disease-A Guide for Families and Caregivers by Lenore Powell and Katie Courtice. Perseus Publishing.  Revised and updated, 2002.

Coping with Alzheimer’s – A Caregiver’s Emotional Survival Guide by Rose Oliver and Frances Bock.  Dodd, Mead and Co., 1987.

RESOURCES FOR CHILDREN AND TEENS

What's Happening to Grandpa? by Maria Shriver; Little, Brown and Company, 2004

Grandma’s Cobwebs by Ann Frantti, Dagney Publishing, 2002.

Maria's Grandma Gets Mixed Up by Doris Sanford. Multonomah, 1989.

Something to Remember Me By by Susan V. Bosak with Laurie McGaw. The Communication Project, 2000.

Sachiko Means Happiness by Kimiko Sakai. Children's Book Press, 1990

Wilfred Gordon McDonald Partridge by Mem Fox. Kane/Miller Book Publishers, 1985

Grandpa Doesn't Know It's Me by Donna Guthrie. Human Sciences Press.

ElderCare Online has an excellent resource section for teens that includes information, resources, and a chat room at www.econline.net/Knowledge/SolutionSets/teens.htm

 

For further general information regarding reading recommendations and educational resources for Alzheimer's disease contact:

Alzheimer's Association National Clearing House -  800-272-3900
www.alz.org

Alzheimer's Disease Education and Referral (ADEAR) - 800-438-4380
http://www.nia.nih.gov/alzheimers

Family Caregiver Alliance - 800-445-8106
http://www.caregiver.org

For general caregiving issues that are not Alzheimer’s specific refer to http://www.caregiver.com