Patient and Family Resources
The Shiley-Marcos ADRC team recognizes that coping with the changes associated with Alzheimer’s disease and related dementias is an ongoing process that impacts the lives of the diagnosed individuals, their family members, and their relationships in the community. Adequate education about the disease process and sufficient knowledge of the multifaceted resources available to individuals and their family members is paramount to successful coping.
Compiled by Tracey Truscott LCSW and Susan Shepherd, LCSW, the Shiley-Marcos ADRC provides the following list of patient and family resources to consolidate and synthesize a great deal of information that can otherwise feel fragmented and overwhelming. In addition, we recommend that you review the NIA's ADEAR fact sheets and brochures. These materials are concise and developed to provide a lay audience with factual, up to date information that can give an excellent overview on a wide array of topics. Finally, if you are caregiving for a person wtih dementia, please take the time to access this Wish List for Caregivers. It was created by the devoted Caregivers of our Early Stage Support group.
In addition to education and resources, the Shiley-Marcos ADRC offers the community an opportunity to be involved in a variety of Quality of Life programs organized through our research center and partnering agencies. All programs are free-of charge. Click onto the links below for more information on each program. Contact Tracey Truscott, LCSW at firstname.lastname@example.org for more information or to register.
* If you are looking for specific resources for a diagnosis other than Alzheimer's disease, go to the toolbar and select your diagnosis under "we serve persons with" to find more specific information and resources.