Patient and Family Resources
The Shiley-Marcos ADRC team recognizes that coping with the changes associated with Alzheimer’s disease and related dementias is an ongoing process that impacts the lives of the diagnosed individuals, their family members, and their relationships in the community. Adequate education about the disease process and sufficient knowledge of the multifaceted resources available to individuals and their family members is paramount to successful coping. Therefore, the following list of patient and family resources was compiled by Lisa Snyder, LCSW and Susan Shepherd, LCSW to consolidate and synthesize a great deal of information that can otherwise feel fragmented and overwhelming.
You will find a list of sources that provide general information about Alzheimer’s disease progression and etiology, as well as links to fact sheets and brochures. Additionally, a list of resources for caregivers and family members has been provided; this list includes support groups and respite options as well as information and referral sources. Finally, several links to the many governmental and non-profit organizations that are committed to providing education, support, and outreach to individuals with AD and their families are provided.
In addition to the information compiled as a resource guide for individuals and their families, the Shiley-Marcos ADRC offers to the community the opportunity to be involved in a variety of Quality of Life programs organized through our research center and partnering agencies. All programs are free-of charge with the exception of Out and About. Click onto the blue links for more information.
- Out and About – A weekly outings-based program for people with mild-to-moderate dementia
- Memories at the Museums – Monthly docent-led tours of four Balboa Park Art Museums for persons with mild-to-moderate dementia and an accompanying caregiver or friend.
- Support Groups:
- Early-Stage Support Group – A weekly support group for people with early-stage dementia and their care partners
- Young Caregiver Support Group– A monthly support group for caregivers under the age of 60 who are caring for a loved one with any stage or type of dementia.
- Caregiver Support Group– A monthly support group for caregivers of any age who are caring for a loved one with any stage or type of dementia