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Patient and Family Resources

The Shiley-Marcos ADRC team recognizes that coping with the changes associated with Alzheimer’s disease and related dementias is an ongoing process that impacts the lives of the diagnosed individuals, their family members, and their relationships in the community. Adequate education about the disease process and sufficient knowledge of the multifaceted resources available to individuals and their family members is paramount to successful coping.

Compiled by Tracey Truscott LCSW and Susan Shepherd, LCSW, the Shiley-Marcos ADRC provides the following list of patient and family resources to consolidate and synthesize a great deal of information that can otherwise feel fragmented and overwhelming. In addition, we recommend that you review the NIA's ADEAR fact sheets and brochures. These materials are concise and developed to provide a lay audience with factual, up to date information that can give an excellent overview on a wide array of topics. Finally, if you are caregiving for a person wtih dementia, please take the time to access this Wish List for Caregivers. It was created by the devoted Caregivers of our Early Stage Support group.

In addition to education and resources, the Shiley-Marcos ADRC offers the community an opportunity to be involved in a variety of Quality of Life programs organized through our research center and partnering agencies. All programs are free-of charge. Click onto the links below for more information on each program. Contact Tracey Truscott, LCSW at ttruscott@ucsd.edu for more information or to register.

Memories at the Museums – Monthly docent-led tours of four Balboa Park Art Museums for persons with mild-to-moderate dementia and an accompanying caregiver or friend.
My Life through the Lens – This four-session photo taking, album making workshop developed by the Museum of Photographic Arts (MOPA) is offered a few times/year to participants with Alzheimer's or a related disorder and an accompanying family member or friend. *Also offered in Spanish.
Musical Biographies – In this 6-session multisensorial workshop, participants will create an individualized music playlist, recount the memories it inspires, and create a memory book. This program is offered through a partnership between Villa Musica and the Shiley-Marcos Alzheimer's Disease Research Center.

Support Groups:

Early-Stage Support Group – A weekly support group for people with early-stage dementia and their care partners
Caregiver Support Group – A monthly support group for caregivers of any age who are caring for a loved one with any stage or type of dementia
Young Onset Support Group – a monthly support group for individucals who are in the early stage of Alzheimer's or a realted disorder and under age 60.
UCSD ADRC Non-AD Dementias Caregiver Support Group – A monthly support group for family members and care partners who are facing the challenges of Lewy Body and Frontotemporal Dementias.
Four Four Support Group – A monthly support group for individuals who have learned that they have two copies of the e4 allele of the apolipoprotein
E gene (ApoE).

* If you are looking for specific resources for a diagnosis other than Alzheimer's disease, go to the toolbar and select your diagnosis under "we serve persons with" to find more specific information and resources.