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All rights reserved.
Helpful Web Sites for People with Alzheimer's and Related Disorders

http://health.ucsd.edu/specialties/socare/

A multidisciplinary team of geriatric specialists identify current and potential health problems and make realistic recommendations for treatment and care. 

 

http://www.sanalz.org

This is the web site for the local San Deigo chapter of the Alzheimer's Association. Their services, events, and educational programs are featured on this site.

 

http://www.alz.org

This web site of the US National Alzheimer’s Association has a section for the person with AD with a message board for correspondence. The material on the web site is concise, but useful.

 

http://www.alzheimer.ca

The web site for the Canadian Alzheimer’s Society has a very helpful and extensive section devoted to persons with AD with both educational material and personal testimonies.

 

http://www.alzheimers.org.au

This web site for Alzheimer’s Australia has a section devoted to persons with dementia with an excellent assortment of detailed Help Sheets on different topics that can be downloaded.

 

http://www.alzheimersforum.org/site/index.php

This web site of the Alzheimer’s Society of the UK has a site called the Alzheimer’s Forum where people with dementia share experiences.

 

http://www.alzheimersforum.org

The first Alzheimer Society local web page to be designed by people with dementia. Provides nformation on the services of this UK branch as well as being a voice for people with dementia.

 

http://www.dasninternational.org/

This educational web site and online chat room is organized by the Dementia Advocacy and Support Network (DASN), a group of international individuals with AD or related disorders. It is not professionally monitored or facilitated.

 

http://www. agelessdesign.com

Ageless Designs has a daily news service. Sign up through their web site and receive daily international news clips that report on all different up-to-date aspects of AD. This is a very reputable web site and a great source of updated information. You will only receive one email a day.

 

http://www.nia.nih.gov/alzheimers

Valuable updates on AD research and news through the national Alzheimer’s Disease Education and Referral (ADEAR) organization.

 

http://www.adcs.org/Research/registry.aspx

The Alzheimer’s Disease Cooperative Study (ADCS), in collaboration with the National Institute on Aging, is developing a nationwide information network of people who are affected by Alzheimer’s disease (AD), have undiagnosed memory disorders, or are interested in learning more about AD and dementia.  The purpose of the information network is to educate the public about AD research and upcoming clinical research studies.

 

Selected Reading List for Persons with Dementia

 

Newsletter:

 

Perspectives - A Newsletter for Individuals with Alzheimer's Disease or a Related Dementia Written for diagnosed individuals. Includes essays by persons with Alzheimer's, research updates, coping tips, and more. 8 pg. quarterly for free by email or by surface mail for a $20.00 donation. Contact: Lisa Snyder, LCSW at (858) 622-5800 or email to lsnyder@ucsd.edu

 

Brochure:

 

“If You Have Alzheimer’s Disease – What you should know, what you should do.” Adapted from the Canadian Alzheimer’s Society booklet “Just For You” this brochure provides suggestions for coping with early-stage Alzheimer’s. Available through the Alzheimer’s Association at 1-(800)-272-3900 or http://www.alz.org.

 

Fact Sheet:

 

Six-page sheet written for the person with Alzheimer's that discusses early-stage issues. Contact Family Caregiver Alliance at (415)-434-3388 or http://www.caregiver.org.

 

Books:

The following books either provide direct testimony from persons with Alzheimer’s or are written directly to them. Listed in order of most recent publication.

 

Alzheimer’s from the Inside Looking Out by Richard Taylor Baltimore: Health Professions Press, 2006. One man’s essays about living with early-stage Alzheimer’s.

 

A View From Within – Living with Early onset Alzheimer’s by Thaddeus Raushi. The author shares his experiences and philosophy of living with the early-onset disease. Available through the Northeastern New York Alzheimer’s Association at 800-303-2218

 

Losing My Mind-An Intimate Look at Life with Alzheimer’s by Thomas DiBaggio, 2002, Touchstone Books. The author shares his experiences of early-onset AD.

 

Speaking Our Minds - Personal Reflections from Individuals with Alzheimer's by Lisa Snyder, LCSW, 2000, W.H. Freeman Publishers. Seven persons with Alzheimer's (ages 35-

80) discuss their feelings, thoughts, and experiences of living with the disease intertwined with the author's own insights and educational information.

 

Alzheimer's: The Answers You Need by Helen D. Davies and Michael P. Jensen, 1998, Elder Books Publishers. Written to the person with Alzheimer's, this book provides concise and very direct answers to over 100 commonly asked questions about the disease.

 

Partial View: An Alzheimer's Journal text by Cary Smith Henderson, photographs by Nancy Andrews, 1998, Southern Methodist University Press. A retired professor's journal entries of living with Alzheimer's accompanied by photographs.

 

My Journey into Alzheimer's Disease by Robert Davis, 1989, Tyndale House Publishers. A minister's personal account of his spiritual journey of living with Alzheimer's.