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SELECTED READING LIST FOR PEOPLE WITH ALZHEIMER’S

Updated November, 2010  by Lisa Snyder, LCSW
University of California, San Diego, Shiley-Marcos Alzheimer’s Disease Research Center

NEWSLETTER:

Perspectives  - A Newsletter for Individuals with Alzheimer's or a Related DisorderIncludes essays by persons with dementia, research updates, coping tips, and more.  8 pg. quarterly for FREE by email or by surface mail for a $20.00 donation.  Contact: Lisa Snyder, LCSW at (858) 622-5800 or lsnyder@ucsd.edu. Read issues online at: http://adrc.ucsd.edu/news.html.

BROCHURE:

"If You Have alzheimers Disease - What you should know, what you should do" . Adapted from the Canadian Alzheimer's Society booklet "Just for You", this brochure provides suggestions for coping with early-stage Alzheimer's. Available through the Alzheimer's Association at 1- (800) 272-3900 or http://www.alz.org

GUIDEBOOKS:

Living Your Best with Early-Stage Alzheimer’s – An Essential Guide by Lisa Snyder, LCSW. 2010, Sunrise River Press, Publishers. A comprehensive guide written for people with early-stage Alzheimer’s that covers 30 common topics and concerns, provides discussion questions and practical suggestions, and includes important messages from people with Alzheimer’s.

What To Do When the Doctor Says it’s Early-Stage Alzheimer’s by Todd Feinberg and Winnie Yu. 2005, Fair Winds Press. A guide for families dealing with the early stages of Alzheimer’s that provides general information about Alzheimer’s and planning for the future.

Alzheimer's Early Stages: First Steps for Family, Friends, and Caregiversby Daniel Kuhn, MSW. Second edition, 2003. Hunter House Inc. An excellent guidebook for care partners that addresses issues relevant to the early-stages and provides much helpful caregiver testimony.

Alzheimer's: The Answers You Need by Helen D. Davies and Michael P. Jensen, 1998, Elder Books Publishers.  Written to the person with Alzheimer’s, this book provides concise answers to over 100 commonly asked questions about dementia. Some medical information is outdated.

Taking Action: A Personal and Practical Guide for Persons with Memory Loss.  A 58-page workbook for persons with dementia that includes brief discussions on important early-stage issues and the opportunity to write down important personal information about living with dementia. To request a copy, email Vickie Mohr at Vickie.Mohr@alz.org or download the workbook at: http://www.alz.org/mnnd/documents/2010_Taking_Action_e-book.pdf

Dementia Guide from Health Scotland: A booklet that covers important topics such as diagnosis; effective coping strategies; legal and financial planning; practical support.  Available to download at http://www.healthscotland.com/documents/15.aspx

By Us For Us Guides  Published in Canada, these guides are written by and for persons with dementia and cover: Memory Workouts; Managing Triggers; Enhancing Wellness; Tips and Strategies; and Communication. They are available to download for free or to order at: http://www.marep.uwaterloo.ca/products/bufu.html

PERSONAL TESTIMONY FROM PEOPLE WITH DEMENTIA:

Speaking Our Minds – What it’s Like to Have Alzheimer’sby Lisa Snyder, LCSW. Health Professions Press, 2009 (revised edition). Seven persons with AD (ages 35-to-80) discuss their experiences of living with AD intertwined with the author's insights and educational information.

Alzheimer’s from the Inside Looking Out by Richard Taylor. Baltimore: Health Professions Press, 2006.  One man’s essays about living with dementia.

A View From Within by Thaddeus Raushi. The author shares his experiences and philosophy of living with the early-onset dementia. Available through the Northeastern New York Alzheimer’s Association at 518-867-4997.

Partial View: An Alzheimer's Journal  text by Cary Smith Henderson, photographs by Nancy Andrews. Southern Methodist University Press, 1998.  A retired professor's journal entries of living with Alzheimer's accompanied by photographs.

My Journey into Alzheimer's Diseaseby Robert Davis, 1989, Tyndale House Publishers.  A minister's personal account of his journey of living with dementia.

 

Helpful Web Sites for People with Early-Stage Alzheimer's or Related Disorders

Updated November, 2010 by Lisa Snyder, LCSW
University of California, San Diego, Shiley-Marcos Alzheimer’s Disease Research Center

http://www.alz.org
This web site of the US National Alzheimer’s Association has a section for the person with Alzheimer’s called “If You Have Alzheimer’s” with succinct information and a message board for correspondence.

http://www.alzheimer.ca
The web site for the Canadian Alzheimer’s Society has a helpful and extensive section devoted to persons with dementia called “I have Alzheimer’s Disease” with both educational material and personal testimonies.  

http://www.alzheimers.org.au
This web site for Alzheimer’s Australia has a section called “I Have Dementia” with an excellent assortment of detailed Help Sheets on different topics that can be downloaded.

http://forum.alzheimers.org.uk
An Alzheimer Society of the UK website that provides a chat room for people with dementia and other resources.

http://www.dasninternational.org/
This web site and online chat room is organized by the Dementia Advocacy and Support Network (DASN), a group of international individuals with dementia.

http://www.agelessdesign.com
Ageless Designs has a email news service called “Alzheimer’s Daily News.” Sign up through their web site and receive daily national and international news clips that report on Alzheimer’s and related dementias.  This is a very reputable web site and a great source of updated information.  You will only receive one email a day.

http://www.nia.nih.gov/alzheimers
Valuable updates on AD research and news through the national Alzheimer’s Disease Education and Referral (ADEAR) organization.