Copyright © 2018 UCSD ADRC.
All rights reserved.

 

Announcements

COVID-19

We hope that you and your loved ones are doing well and we will keep this page up to date with notices, information, and resources impacting our Shiley-Marcos ADRC participants during this time.

Considering the current Coronavirus guidelines regarding social distancing, we are suspending all in-person visits for the following activities until further notice.

  • Observational research study visits
  • Quality of Life Programs, including support groups and activity programs
  • Educational workshops and classes

Due to popular demand, our social workers continue to offer support groups using Zoom. We are participating in virtual educational outreach efforts, such as town hall discussion panels hosted by community partner organizations and developing our own virtual series of presentations for homebound individuals interested in learning about various aspects of ADRD and research currently underway.

Our staff is telecommuting during this time, and we are hoping to use this opportunity to stay connected with our participants to check in and provide resources and referrals as needed. You will be receiving a call from a staff member in the upcoming weeks. Our social work team has worked with our community partners to develop a comprehensive resource list and guide to assist seniors during this unprecedented time. We have posted this resource on our COVID-19 specific page in English and Spanish.

We will continue to check our voicemail system but also encourage you to reach out via e-mail. You can contact the center at: adrc@ucsd.edu for general inquiries. For access to our social workers, you can email Tracey Truscott, LCSW at ttruscott@ucsd.edu or Ivonne Arias, MSW at imarias@ucsd.edu (bilingual English/Spanish). To reach out to our operations manager, Christina Gigliotti, you can email cgigliotti@ucsd.edu.

As the observational longitudinal study requires an annual assessment, we have made modifications to gather as much data by phone as possible for individuals whose annual visit will be impacted by the aforementioned timeframe. We will contact you to schedule a telephone appointment with one of our staff members. Once the social distancing guidelines are relaxed and in-person visits can be safely reinstated, a subset of individuals may be invited to come in person to complete an abbreviated version of the in-person visit to supplement the telephone interview.  

Clinical drug trial operations at the ADRC have been modified on a trial by trial basis. The UCSD team is in close communication with the study sponsors to determine the procedures that should continue, or the study visits that can be modified or placed on hold. For all studies, essential safety visits are continuing to be scheduled on-site, or through direct coordination between the clinical research coordinator and the study participant. Some studies have allowed for telephone assessments and communication, while other studies are modifying procedures to account for delays. We are grateful to all our research participants and are following UCSD guidelines to ensure safety measures are in place for study visits. The clinical trials team continues to add new studies to our portfolio regularly and encourages individuals who are interested in participating to reach out to our team at the ADRC.

We are still honoring brain donations for ADRC participations unless the individual has tested positive for COVID-19. If you need assistance regarding brain autopsy, please call 619-543-6737 and ask for the Alzheimer’s physician on call.

*Due to social distancing regulations, we are interested in determining the feasibility of remote cognitive testing and other data collection using teleconferencing software such as Zoom or Facetime. We would also appreciate learning of your willingness to engage in this method of participation during this (short, we hope!) unusual period.

To help us decide how to proceed, we emailed all of our active participants in the longitudinal study a brief 10-question survey. We would be incredibly grateful if you would take a few moments to complete it as soon as possible, so we can formulate our plans in response to your input. If you did not receive the survey, please check your junk mail in case your spam filter snagged it or reach out to let us know (cgigliotti@ucsd.edu) and we will send it again.

If you are trying to reach Dr. Corey-Bloom and the Huntington’s Disease Center of Excellence, please call 858-249-0574

We wish you and your loved ones all the best; reach out if we can be of assistance.

Take good care – The Shiley-Marcos ADRC Team

Visit our COVID19 resources link for seniors and families living with ADRD

English and Spanish.

Visit our patient and family resources link for updated resource guides and access to our new Meaningful Activities link.

Updated 5/16/20

 

Upcoming Events to be Suspended

Until Further Notice

Blood Tests for the Brain

Confirmation of the diagnosis of Alzheimer’s disease has relied on brain imaging or examination of cerebrospinal fluid. While these tests can confirm the buildup of amyloid and tau proteins in the brain are expensive and involve radiation (PET scans) or require a lumbar puncture (CSF).
Recent advances have enabled amyloid and certain forms of tau to be detected in the blood. These blood tests correlate with brain pathology and show promise in supporting the diagnosis of Alzheimer’s, even when symptoms are still mild.
Dr. Galasko is working with several groups of investigators who are aiming to develop different types of blood tests for Alzheimer’s Disease and related disorders. To support the initial ‘discovery’ testing of these assays, we would like to be able to share either plasma or serum (different cell-free preparations from blood) with collaborators from a set of patients with established Alzheimer’s Disease and cognitively normal controls.

If you are a participant in our annual longitudinal study with a diagnosis of "Alzheimer's disease", we need your help!

 

Musical Biographies and My Life Through the Lens 2020

Persons with changes in thinking and their care partners are invited to participate in our no-cost quality of life programs offered in collaboration with our fabulous community partners.

My Life Through the Lens meets weekly for four weeks in April (English) and again in June (Spanish).

Villa Musica meets weekly for five weeks in May and again in September.

Contact Tracey Truscott, LCSW to pre-register and click here for more information and to view the flyers.

Memory Screening Days 2020

The Shiley-Marcos ADRC will be offering free memory screening services on an appointment basis. No additional group events are scheduled at this time. If you would like to have an assessment, please contact the Shiley-Marcos ADRC for an appointment.

Read the article about the importance of memory screening from the 2020 online Union Tribune.

There is no cost to participate, but appointments are required: Call 858-822-4800 or email adrc@ucsd.edu with "memory screening" in the subject line to request an available appointment.

Memory Loss 101 Presentations at Glenner's Town Square in Chula Vista

UC San Diego SMADRC and Alz San Diego team up to present at Glenner Town Square in English and Spanish.

English Presentations:

Tue May 12 (12-1:30): English-language

Tue July 14 (12-1:30): English-language

Spanish Presentations:

Tue April 28th (12-1:30): Spanish-language

Tue July 28 (12-1:30): Spanish-language

 


2020 Alzheimer's Walks
Families and friends are very welcome! Save the dates.

Saturday, October 3, 2020  (Walk to End Alzheimer’s)
Location:         NTC Park Liberty Station
Registration:   https://tinyurl.com/2020ALZwalk

Saturday, October 17, 2020  (Walk4ALZ)
Location:         Balboa Park
Registration:   https://tinyurl.com/2020sdwalk

Join in the fun to make a difference! Register now for a UCSD t-shirt!