We hope that you and your loved ones are doing well and we will keep this page up to date with notices, information, and resources impacting our Shiley-Marcos ADRC participants during this time.
Considering the current Coronavirus guidelines regarding social distancing, we are suspending all in-person visits for the following activities until further notice.
Due to popular demand, our social workers continue to offer support groups using Zoom. We are participating in virtual educational outreach efforts, such as town hall discussion panels hosted by community partner organizations and developing our own virtual series of presentations for homebound individuals interested in learning about various aspects of ADRD and research currently underway.
Our staff is telecommuting during this time, and we are hoping to use this opportunity to stay connected with our participants to check in and provide resources and referrals as needed. You will be receiving a call from a staff member in the upcoming weeks. Our social work team has worked with our community partners to develop a comprehensive resource list and guide to assist seniors during this unprecedented time. We have posted this resource on our COVID-19 specific page in English and Spanish.
We will continue to check our voicemail system but also encourage you to reach out via e-mail. You can contact the center at: firstname.lastname@example.org for general inquiries. For access to our social workers, you can email Tracey Truscott, LCSW at email@example.com or Ivonne Arias, MSW at firstname.lastname@example.org (bilingual English/Spanish). To reach out to our operations manager, Christina Gigliotti, you can email email@example.com.
As the observational longitudinal study requires an annual assessment, we have made modifications to gather as much data by phone as possible for individuals whose annual visit will be impacted by the aforementioned timeframe. We will contact you to schedule a telephone appointment with one of our staff members. Once the social distancing guidelines are relaxed and in-person visits can be safely reinstated, a subset of individuals may be invited to come in person to complete an abbreviated version of the in-person visit to supplement the telephone interview.
Clinical drug trial operations at the ADRC have been modified on a trial by trial basis. The UCSD team is in close communication with the study sponsors to determine the procedures that should continue, or the study visits that can be modified or placed on hold. For all studies, essential safety visits are continuing to be scheduled on-site, or through direct coordination between the clinical research coordinator and the study participant. Some studies have allowed for telephone assessments and communication, while other studies are modifying procedures to account for delays. We are grateful to all our research participants and are following UCSD guidelines to ensure safety measures are in place for study visits. The clinical trials team continues to add new studies to our portfolio regularly and encourages individuals who are interested in participating to reach out to our team at the ADRC.
We are still honoring brain donations for ADRC participations unless the individual has tested positive for COVID-19. If you need assistance regarding brain autopsy, please call 619-543-6737 and ask for the Alzheimer’s physician on call.
*Due to social distancing regulations, we are interested in determining the feasibility of remote cognitive testing and other data collection using teleconferencing software such as Zoom or Facetime. We would also appreciate learning of your willingness to engage in this method of participation during this (short, we hope!) unusual period.
To help us decide how to proceed, we emailed all of our active participants in the longitudinal study a brief 10-question survey. We would be incredibly grateful if you would take a few moments to complete it as soon as possible, so we can formulate our plans in response to your input. If you did not receive the survey, please check your junk mail in case your spam filter snagged it or reach out to let us know (firstname.lastname@example.org) and we will send it again.
If you are trying to reach Dr. Corey-Bloom and the Huntington’s Disease Center of Excellence, please call 858-249-0574
We wish you and your loved ones all the best; reach out if we can be of assistance.
Take good care – The Shiley-Marcos ADRC Team
Visit our COVID19 resources link for seniors and families living with ADRD
Visit our patient and family resources link for updated resource guides and access to our new Meaningful Activities link.
Upcoming Events to be Suspended
Until Further Notice
Blood Tests for the Brain
Confirmation of the diagnosis of Alzheimer’s disease has relied on brain imaging or examination of cerebrospinal fluid. While these tests can confirm the buildup of amyloid and tau proteins in the brain are expensive and involve radiation (PET scans) or require a lumbar puncture (CSF).
If you are a participant in our annual longitudinal study with a diagnosis of "Alzheimer's disease", we need your help!
Musical Biographies and My Life Through the Lens 2020
Persons with changes in thinking and their care partners are invited to participate in our no-cost quality of life programs offered in collaboration with our fabulous community partners.
My Life Through the Lens meets weekly for four weeks in April (English) and again in June (Spanish).
Villa Musica meets weekly for five weeks in May and again in September.
Contact Tracey Truscott, LCSW to pre-register and click here for more information and to view the flyers.
Memory Screening Days 2020
The Shiley-Marcos ADRC will be offering free memory screening services on an appointment basis. No additional group events are scheduled at this time. If you would like to have an assessment, please contact the Shiley-Marcos ADRC for an appointment.
Read the article about the importance of memory screening from the 2020 online Union Tribune.
There is no cost to participate, but appointments are required: Call 858-822-4800 or email email@example.com with "memory screening" in the subject line to request an available appointment.
Memory Loss 101 Presentations at Glenner's Town Square in Chula Vista
UC San Diego SMADRC and Alz San Diego team up to present at Glenner Town Square in English and Spanish.
Tue May 12 (12-1:30): English-language
Tue July 14 (12-1:30): English-language
Tue April 28th (12-1:30): Spanish-language
Tue July 28 (12-1:30): Spanish-language